Useful Links

This page contains links to a variety of information which you may find useful. This includes courses and projects as well as links to other organisations information or educational websites. For information from the Welsh Assembly Government for supporting learners with healthcare needs, please click here.

 

Useful contacts:

 

Asthma

  1. Asthma UK Cymru

Helpline: 0300 222 5800

www.asthma.org.uk/

 

  1. Guidance on the use of emergency salbutamol inhalers in schools in Wales

(Welsh Government, 2014)

www.learning.gov.wales/resources/browse-all/use-of-emergency-salbutamol-inhalers-inschools-

in-wales/?lang=en

 

Anaphylactic shock

  1. Allergy UK

Helpline: 01322 619898

www.allergyuk.org/

 

  1. Anaphylaxis Campaign

Helpline: 01252 542029

www.anaphylaxis.org.uk/

 

Child support organisations

  1. Action for Children

Tel: 0300 123 2112

www.actionforchildren.org.uk/

  1. Action for Sick Children

Helpline: 0800 074 4519

www.actionforsickchildren.org.uk/

  1. Barnardo’s Cymru

Tel: 02920 493387

www.barnardos.org.uk/wales

  1. Children in Wales

Tel: 02920 342434

www.childreninwales.org.uk/

 

Diabetes

  1. Diabetes UK Cymru

Tel: 02920 668276

www.diabetes.org.uk/

The Welsh Government is not responsible for the content of any external links listed within this

document.

 

Diabetes IHP template

www.diabetes.org.uk/Guide-to-diabetes/Your-child-and-diabetes/Schools/IHP-achilds-

individual-healthcare-plan/

Diabetes UK school and parent resource packs

www.diabetes.org.uk/Guide-to-diabetes/Your-child-anddiabetes/

Schools/Diabetes-in-schools-resources

 

Epilepsy

  1. Epilepsy Action Wales

Tel: 01633 253407

Helpline: 0808 800 5050

www.epilepsy.org.uk/involved/branches/cymru

  1. Epilepsy Wales

Helpline: 0800 228 9016

www.epilepsy-wales.org.uk

  1. Young Epilepsy

Helpline: 01342 831342

www.youngepilepsy.org.uk

 

Learning difficulties

  1. Learning Disability Wales

Tel: 02920 681160

www.ldw.org.uk

  1. MENCAP Cymru

Helpline: 0808 808 1111

www.mencap.org.uk

  1. Special Needs Advisory Project (SNAP) Cymru

Helpline: 0845 120 3730

www.snapcymru.org/

 

Medical-based support organisation

  1. The National Autistic Society Cymru

Helpline: 0808 800 4104

www.autism.org.uk/?nation=wales&sc_lang=en-GB

  1. Bobath Children’s Therapy Centre Wales

Tel: 029 2052 2600

www.bobathwales.org

  1. Cerebra – for brain-injured children and young people

Tel: 01267 244200

www.w3.cerebra.org.uk

 

  1. Crohn’s in Childhood Research Association (CICRA) ‒ for children with Crohn’s

and colitis

Tel: 0208 949 6209

www.cicra.org

  1. CLIC Sargent – for children with cancer

Helpline: 0300 330 0803

www.clicsargent.org.uk

  1. Coeliac UK

Helpline: 0333 332 2033

www.coeliac.org.uk/local-groups/?region=wales

  1. Cystic Fibrosis Trust

Helpline: 0300 373 1000

www.cysticfibrosis.org.uk

  1. Headway – the brain injury association

Helpline: 0808 800 2244

www.headway.org.uk/home.aspx

  1. Migraine Action

Tel: 08456 011 033

www.migraine.org.uk

  1. Multiple Sclerosis Society

Helpline: 0808 800 8000

www.mssociety.org.uk

  1. Muscular Dystrophy UK

Helpline: 0800 652 6352

www.musculardystrophyuk.org

  1. National Attention Deficit Disorder Information and Support Service (ADDiSS)

Tel: 0208 952 2800

www.addiss.co.uk

  1. National Eczema Society

Helpline: 0800 089 1122

www.eczema.org

  1. Prader-Willi Syndrome Association UK

Helpline: 01332 365676

www.pwsa.co.uk

  1. Spina Bifida and Hydrocephalus Information (Shine)

Tel: 01733 555988

www.shinecharity.org.uk

  1. Welsh Association of ME and CFS Support

Helpline: 029 2051 5061

www.wames.org.uk

 

Mental health

  1. Child and Adolescent Mental Health Service (CAMHS)

www.mental-health-matters.org.uk/page7.html

  1. Mind Cymru

Tel: 02920 395123

www.mind.org.uk/about-us/mind-cymru

Public bodies

  1. Contact a Family – for families with disabled children

Helpline: 0808 808 3555

www.cafamily.org.uk

  1. Children’s Commissioner for Wales

Tel: 01792 765600

www.childcomwales.org.uk

  1. Equality and Human Rights Commission

Helpline: 0808 800 0082

www.equalityhumanrights.com

  1. Health and Safety Executive

Tel: 02920 263120

www.hse.gov.uk

  1. National Children’s Bureau Council for Disabled Children

Tel: 020 78436000

www.ncb.org.uk

  1. National Health Service Direct Wales

Tel: 0845 46 47

www.nhsdirect.wales.nhs.uk/contactus/feelingunwell

  1. Information Commissioner’s Office Wales

Tel: 029 2067 8400

Helpline: 0303 123 1113

www.ico.org.uk/for-organisations/education

 

Children’s rights

  1. Children’s Rights Wales

The United Nations Convention on the Rights of the Child (UNCRC) is a list of

rights for all children and young people, no matter who they are or where they live.

These rights are the things that they need to be safe, healthy and happy.

www.childrensrights.wales

 

Sensory impairment

  1. Action on Hearing Loss

Helpline: 0808 808 0123

Textphone: 0808 808 9000

www.actiononhearingloss.org.uk/default.aspx

  1. The National Deaf Children’s Society (NDCS) Cymru

Tel: 0808 800 8880

www.ndcs.org.uk/family_support/support_in_your_area/wales

  1. Royal National Institute of Blind People (RNIB)

Helpline: 0303 123 9999

www.rnib.org.uk/wales-cymru-1

  1. Sense Cymru – services across Wales for deafblind people and their families

Tel: 0300 330 9280

Textphone: 0300 330 9282

www.sense.org.uk/content/sense-cymru-wales

 

Speech and language

  1. Afasic Cymru ‒ helping children who have difficulty speaking and understanding

Helpline: 0300 666 9410

www.afasiccymru.org.uk

Benefits
A comprehensive guide to claiming carers and disability benefits, income support and other benefits can be found at
www.gov.uk/browse/benefits  
For a comprehensive guide to Income Support, click here.

Contact a Family also have information on benefits here.

EMA (Education Maintanance Allowance)
Applying for EMA  – This is the official guide. Find out if you are eligible / how much you get and order an application form.
Click
here to visit their website.

 

The National Autistic Society
The National Autistic Society is the leading UK charity for people with autism (including Asperger syndrome) and their families. The NAS provide information, support and pioneering services, and campaign for a better world for people with autism. Their website can be accessed here.

 

Pembrokeshire Branch
The Pembrokeshire branch is a growing group with their own website, which can be accessed here.
A list of their meetings, held in Fishguard, Haverfordwest and Pembroke, for 2016 can be downloaded here.

 

asdinfowales 
{Links to lots of information about autism – living with autism and caring for those on the autistic spectrum.}

Contact a Family
Contact a Family is a UK wide charity providing advice, information and support to families with disabled children regardless of the disability or condition of the child, through a network of offices and cluster teams across the country.
Their website can be accessed
here.



Parents Information Website
This site aims to provide advice to adults who either care for or work with children who have:

  • co-ordination skills difficulties
  • visual perception difficulties
  • physical difficulties / sensory difficulties when completing everyday activities.

There are video clips and links to other useful resources.
You will need the log-in: sen.parent
password: Pass91227 for
this site

 

Foundation for People with Learning Disabilities
Aims to break down the economic and social barriers and prejudices that people with learning disabilities face throughout their lives, as well as providing information, resources and services that can help them lead fuller, more independent lives. For their website, click
here
The Foundation has also launched an easier to read resource about what to expect from the NHS.


Good Health Care for All (insert link here)


SENSE

The UK’s largest deafblind charity which provides specialist services to deafblind children and adults giving them vital information.

Click here to visit their website. 

SENSE have produced an excellent booklet for parents entitled, ‘Making Play Inclusive’, which can be downloaded here.

 

NDCS
To contact the Pembrokeshire group of the National Deaf Childrens Society, click here for NDCS Wales.

 

Citizens Advice Bureaux

Citizens advice bureaux provides information about there services and how to get advice on how there campaign and policy work.
Click here to visit their website.
 

Downs Syndrome Association

The Down Syndrome Association provides information for people with Downs Syndrome, their parents carers and the professionals who work with them.
Click here to visit their website. 

SNAP Cymru

Snap is the leading provider of independent parental support services in Wales providing information and support to families of children and young people who have or may have special educational needs.

Click here to visit their website. 

 

Action For Children

Action for Children supports and speaks out for the most vulnerable children and young people in the UK.

Click here to visit their website.



PAVS
PAVS is the county voluntary council, supporting community groups within Pembrokeshire.
Click
here to visit their website.



hft Holiday Information Guide
hft is a charity providing support services for people with learning disabilities and their families throughout England, but they do produce a very comprehensive guide to holidaying in the UK and abroad. The 2014 edition is now available and contains information on tour operators, places to stay, special interest holidays, insurance, benefits and much more.
To download a copy, click here.

 


The Holiday Homes Trust
This Trust was founded to provide accessible holiday homes for all families with special needs. They maintain a luxury chalet and caravans at a variety of family holiday centres across the country. To find out more information, click here.


Arts Care Gofal Celf
Arts Care Gofal Celf (ACGC) is a professional Arts organisation based in West Wales with over 20 years experience in delivering high quality projects with people of all ages, backgrounds and lifestyles.
For information about their latest initiatives, click
here. 



Pembrokeshire Youth Zone

A zone for young people, containing information about events, contacts and education.
Click
here to visit their website.



Specialneedsjungle
This site has information, resources and informed opinion about SEN, disability, mental health and rare conditions from birth – 25years.  It has expanded from a personal blog by a parent of a SEN child to a respected portal for special needs and disability issues faced by children, young people and their parents/carers.
www.specialneedsjungle.com


Netbuddy

Netbuddy is an award winning online community for parents, carers and learning disability professionals. The focus is on swapping tips and information on all aspects of supporting people with special needs.
www.netbuddy.org.uk

Social networking site for people with learning difficulties  www.specialfriendsonline.com


Search engines specially designed for children:

http://www.kiddle.co/ (Powered by Google)

www.yahooligans.com

www.ajkids.com

 


Educational websites
Below are links to educational and fun websites to enable students and parents/carers to work and play together. Here are of some of the websites we have used, but we take no responsibility for anything you may inadvertently download whilst using them eg viruses, although we have not experienced any problems.

Espresso is an excellent site which has news, videos and interactive activities on a range of subjects at Foundation Level and at Key Stages 1 & 2.
To access this at home follow the link…
https://home.espresso.co.uk/
In username, enter: student11418
In password, enter: portfieldschool

 

Words for Life
A lovely site to help develop language in a fun way.

http://www.walker.co.uk/kids-den.aspx 
This is a link to the site of the publisher, Walker Books.
There are interactive games, activities and ideas to suit all age groups and abilities, through popular characters such as Maisy, Judy Moody and Alex Rider.
Games can be played on the computer or activities can be downloaded and printed out.

 

Living Books

This is a bright and colourful site with lots of early reader activities, such as matching and memory games.

 

http://www.wordsforlife.org.uk/

This is a site run by the National Literacy Trust to develop literacy by providing tips and information as well as lots of fun activities to do with your child to help develop communication skills.

 

http://www.livingpaintings.org/


This is a free lending library for people with visual impairment.


www.priorywoods.middlesbrough.sch.uk


Useful site for SLD/PMLD activities for pupils infant- teenage, also ideas for teachers.

 

www.enchantedlearning.com


Rebus rhymes to print and activities to support.

 

www.schoolsitesnetwork.com


Leads into primary games.com (literacy,numeracy,science etc games to support topics, but has advertising pop ups on it that can be distracting) and teacherview.com – lesson plans.

 

www.dltk-holidays.com


Craft ideas and resources.

 

www.niehs.nih.gov/kids/home.htm


Lots of songs with lyrics and music and games.

 

www.magickeys.com


Online storybooks to read aloud yourself.

 

www.preschooleducation.com


Ideas and activities based around different topics, some can be adapted for older children.

 

www.bbc.co.uk/schools


Ideas and activities.

 

www.sensite.co.uk


SEN site, links to other sites for resources, information etc per subject.

 

www.angelfire.com/la/kinderthemes/index.html


Ideas for different themes.

 

www.freejigsawpuzzles.com


On-screen jigsaws.

 

www.playkidsgames.com

 

www.bbc.co.uk/wales/snapdragon  – games etc

 

www.magickeys.com/books

Online story books

 

www.ability.org.uk


Click on the Ability logo to enter site then click Search and type in kids and teens in to the Search box – whole pages of info and links.


www.mamamedia.com/


Lots of animation, colour and energy.

 

Resource from ICAN to develop speech and language

www.communicationcookbook.org.uk

 

http://www.signedstories.com/page/index.cfm   online stories read aloud and signed BSL

 

http://www.britishcouncil.org/kids-stories.htm   online stories and activities


http://studentswithlearningdifficulties.blogspot.com/